Opinion: Living With Epilepsy — Ways To Manage Seizures And Improve Quality of Life
There are various approaches to managing seizures, improving quality of life, and creating a supportive environment, empowering people with epilepsy to navigate their condition with confidence.
Dr Divya Nagabushana
Epilepsy affects an estimated 50 million people worldwide, making it one of the most common neurological disorders. In India alone, approximately 12 million people are living with epilepsy. The unpredictable nature of seizures can significantly impact daily life, affecting work, relationships, and overall well-being. However, with the right strategies and a strong support system, many individuals with epilepsy can successfully manage their condition and lead fulfilling lives. There are various approaches to managing seizures, improving quality of life, and creating a supportive environment, empowering people with epilepsy to navigate their condition with confidence and resilience.
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Adherence To Treatment Plans
The cornerstone of epilepsy management is consistent adherence to prescribed antiseizure medications (ASMs). Missing doses increase the risk of seizures, making it vital to follow the treatment regimen. For some individuals, alternative therapies such as surgery, neuromodulation, or dietary therapy such as ketogenic diet may be necessary in addition to medications. It’s essential to communicate with a neurologist or specialists in epilepsy (epileptologists) about any side-effects or concerns, so that the treatment plan can be adjusted as needed.
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Identifying Triggers And Adjusting
Identifying and managing seizure triggers, such as stress, sleep deprivation, flashing lights, alcohol, or certain foods, is the key to reducing seizure frequency. Keeping a seizure journal can help track triggers, allowing for adjustments like reducing/avoiding alcohol intake, practising stress-relief techniques, and ensuring proper sleep hygiene.
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Educating Others And Creating A Support System
Creating an understanding and supportive environment is crucial. Educating family, friends, and colleagues about epilepsy and emergency response can reduce feelings of isolation. Participating in support groups online or in person can also provide a sense of community and encouragement.
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Maintaining A Healthy Lifestyle
A healthy lifestyle, including a balanced diet, regular exercise, and adequate hydration, is vital in seizure management. Exercise improves mood, reduces stress, and may enhance seizure control. To ensure safety, it’s important to consult a healthcare provider before starting a new fitness routine.
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Stress Management
Stress is a common seizure trigger, and managing it is essential. Techniques such as yoga, meditation, or deep breathing can help reduce stress levels. Additionally, addressing anxiety or depression through cognitive behavioural therapy (CBT) can improve emotional well-being and seizure control.
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Regular Medical Check-ups
Regular visits to a healthcare provider are critical for monitoring seizure activity, and adjusting treatments as necessary. Some individuals benefit from wearable technology or seizure-monitoring systems to track their condition and provide real-time updates. Regular check-ups ensure success in managing epilepsy.
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Mental And Emotional Well-being
The emotional impact of living with epilepsy, such as feelings of loneliness or anxiety, should not be overlooked. Building a strong support network, seeking counselling, and practising self-care are essential for maintaining mental health alongside physical well-being.
Living with epilepsy requires support, awareness, and self-care. While seizures may occur occasionally, they don’t define a person. By adhering to treatment plans, identifying triggers, maintaining a healthy lifestyle, and seeking support, individuals with epilepsy can take control of their condition and lead fulfilling lives. Proper management significantly improves overall quality of life.
The writer is MD, DM (Neurology), PDF in Epilepsy (University of Illinois Chicago, USA), and Consultant Neurologist and Epileptologist at Ramaiah Memorial Hospital
[Disclaimer: The information provided in the article, including treatment suggestions shared by doctors, is intended for general informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition.]
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